See also skwidly's notes on this panel.
Death, Illness and Disability in Fantasy and Science Fiction
Jay Lake, Joe Haldeman, John Kessel, Edmund R. Meskys, Pat Reynolds, Ellen Klages
Does the future really only belong to the physically perfect?
I missed the introductions. Lake has cancer and it was looking very grim for a while. Meskys is blind. Klages has a sister with Down Syndrome.
(skwidly's notes state that Haldeman and Klages are also disabled.)
Kessel: actual future or SF treatment (re: description)? not sure. for panel work from disability toward death. nature disability going to change in future
Haldeman: Heinlein's "Waldo" is SF treatment of disaibility
Lake: one of unstated assumptions is that all been fixed in SF; fantasy different kettle of fish, ought to be lots of people missing limbs etc.
Klages: loves "Harrison Berger"; Geordi _Star Trek_ -- fixed or become Borg and doesn't matter
Meskys: read over 50 years ago, Arthur C Clarke juvenile, _Space Station_? boy wins contest, prize fly anywhere in world, space station below legal altitude, goes there; captain is military man who lost both legs & not hampered in zero G
audience: pretty sure Lester del Rey
audience: yes, I remember it
Kessel: essences of SF has been transcendence, solving problems, very seldom linger on someone who lives with a disability, wants to take us away from those things; previous panel about children in SF, Geoff Ryman made point that childbirth & child rearing are difficult & boring, want to get away from
[child _rearing_ boring? well, I guess that's an opinion]
Klages: opposite also true, SF stories where people deliberately disabled, cut off legs so can fit in the pod and do their job, fair number of stories where deliberately multilated to serve machine
Kessel: Varley, "Persistence of Vision," deaf & blind; Pohl, "Man Plus" transformed to fit Martian environment
Klages: "Flowers for Algernon"; mental disability really not played with
someone: Delany worked with some
Klages: Down Syndrome foundation huge supporter of right to life movement because most common reason for aborting child; innocence not necessarily disability
someone, still Klages?: Bernard Wolfe, _Limbo_, deliberate amputation to be in cribs, then artifical limbs
audience (person in scooter): SF tends to wants to fix people with disabilities & make them useful, e.g. _Ship who Sang_; mental disabilities, _Speed of Dark_, but once again, have to be fixed, and protagonist wonders what going to lose by being fixed; most mainstream way deal with disability is Heinlein, _Starship Troopers_, if couldn't fight could do something else (modern Israel also), integrated in society
Kessel: my understanding is that reading doesn't exist in book
audience, multiple: no, you're wrong
audience: turn back to Haldeman, his story "More than the Sum of His Parts"
Haldeman: greviously disabled, used nanotech to transform, becomes nano engineer but rendered insane, most brutally effective rapist in human history, had to put to death on Moon
Klages: theory that SF is the literature of disability because deals with the Other, alienness, and in daily life how treat disabled. If future belongs to physically perfect, there's never going to be another WorldCon: this is the place where it's okay to be.
[I questioned the first part of this later on; the second part has been more eloquently and convincingly questioned than I could ever do by mariness about her experience this year at Readercon.]
Reynolds: technology changes definition of disability. dyslexia was useful as hunter-gatherer, way of thinking in 2-dimensional space
Lake: heard that about ADHD, not dyslexia
Kessel: cochlear implants?
Meskys: deaf have own language and culture, too many get cochlear implants, lose that
audience: please use "deaf person" not "the deaf", don't separate out by language like that
Meskys: active blind people frown on euphemisms
audience: but not "the blind"
audience: is disabled, many times [in genre? life? missing noun in notes] treat like disability as defining quality instead of character ; like "black"
Lake: issue of normativeness: I am about the transparent (unmarked) case in American society, so have no cultural authority on this topic, but observation that people want to normalize what we see, example could imagine bookstore shelving in many different ways but people want genres, tendency to sort & label, tend to assume that thing to do is that normalize yourself, hear about cochlear implants & think "why wouldn't you" but don't participate in deaf culture, as sf author see responsiblity to think about
Klages: don't think anybody normal
audience: turn around, look at disability from different pov, future with enhancements & therefore not having those might be considered disability after a while; examples
audience: (something) not having telepathy
Kessel: _Brain Wave_
audience: _Nova_, villain can't use technology to become cyborg
Lake: Peruvian potato farmers [I have no idea what this means now]
audience: invisible disability, until got glasses at 7 thought everyone saw world as mist (very short sighted & astigmatism), but technology didn't take away that ability; cochlear implants aren't reversible and don't give back
Haldeman: amateur astronomer, removed cornea because of disease, can perceive UV directly now; handicap or power?
[audience consensus seemed to be "power."]
Klages: how many post-apocalypse novels start with plague
Kessel: yes but they follow the ones who don't die
Reynolds: Thomas Covenant, shades into disability. occasionally things like flu as plot device
Lake: _Child Garden_, cancer and plague
Kessel: _Doomsday Book_, plague but intensely realized and human
audience: illness of future? Dan Simmons _Hyperion_, Merlin sickness, daughter aging in reverse; what other kinds of future illness?
Meskys: Keats' clone has TB in same book
Lake: interesting idea: very long-lived people, what happens to mind as people around die
[Daniel Keys Moran's _Last Dancer_ has some of this]
Kessel: to shade over to death, _(something) History of Death_, talks about death as phenomenon that's no longer around in kind of objective way, illness that most don't suffer from [I have no idea if this was fiction or not now]
Klages: what if immortal and have disability? are you disabled forever but can't die from it, sounds like a really bad circle of hell
Haldeman: Le Guin story about planet where people are getting older & older and don't die but abrade away into lumps
audience: disability etc. tend to be used plot devices, story revolves around, any example where just happens
Klages: her _Green Glass Sea_, main character limps, not plot but defines character & relationships to her
Kessel: Lois McMaster Bujold
Lake: but Miles's character is driven by his reaction to his physical state, not incidential
audience: _Crystal Rain_ one-handed character, not plot
Kessel: Niven character loses arm, has psychic arm, then replaced
audience: SF wanting to fix things, hard for me to think that future without disease is at all realistic
Kessel: evolution at work
audience continued: how likely is it that all these future societies would have figured out how to completely eradicate disease; and isn't occasional sickness character-building?
Klages: really interesting to have virus-POV story
audience: Gene Wolfe "Peritonitis"
Lake: we're definitely getting ahead of infectious disease, much just don't get any more; but good point that always will be things that will surprise us
[me, now: also curing viruses once infected is very very hard problem]
Meskys: story in early issue _Galaxy_, by Wallace? "__ Escape", future society where almost every disease & disability cured, every so often some is so badly damaged couldn't be cured, society hated, decided to try and escape and set up own society; story ends with them hjacking starship; later expanded into novel _Address Centauri_ which destroyed everything, because once got beyond sun, something magic happened & all disabilities went away
audience: SF seems to skip a lot that any planet we visited with compatible biology would probably made us very sick, parallel European explorers
Lake: depends on how sciencey want to be, protein match is very serious problem
audience: utopian works, aspirational or wishful thinking? I'm legally blind, partially deaf, to wake up & see person next to me . . .
Lake?: most of us secretly utopians
Kessel: but then want to write stories about problems
Haldeman: also there are just bad writers, no problems in the future
audience: mental illness & social disability, Stat Trek "Tin Man" very subtle way
me: wanted to explore idea that SF literature of disabled because deals with aliens as the Other; hear this in discussions about race but my experience is that it ends up being a way to erase racial minorities and not deal with them--look, we have aliens instead! what does panel think about this with regard to disability
Klages: has picture of her holding her baby sister with Down Syndrome, just born, in which sister looks literally alien, her 6.5 year old self is looking with at her with part wonder & fear, labeled "First contact"; really profoundly other and she's my sister
[I had a very negative reaction on hearing this at first but I do recognize that it was an honest and probably a difficult thing to say, and I'm still trying to figure out how much my reaction to this and to other of Klages's comments (I edited out a couple "ARRGH"s that I put in at the time, but I bet you can spot them) is me knee-jerking in able-bodied sanctimony.]
Reynolds: excitement in reading Thomas Covenant, somebody like me; but at same time "The Other" is a problem like "The Disabled" & "The Deaf" are: doesn't deal with the complexities & nuances; SF draws attention to ideas of differences but really tends not to deal with disability; in preparation for panel, went to LibraryThing looking for books tagged SF/fantasy etc. & disability or disabled, incredibly small number of books, less than 100, most McCaffrey or Bujold
audience: point out two TV shows where just there, really bad Canadian French series _War of the Worlds_, used wheelchair, actor did not (also black); _CSI_, often see character using crutch because actor is double amputee, in series not doing anything about
audience: also _Threshold_?
audience: plans medicial & scientific conference for NIH, did one in which federal government assumes that as population gets older, almost all will get ill or disabled, how deal with; at least US gov't thinking about it some, and with a few ideas from SF (advisory committee on genetic testing, all new members are required to watch _Gattaca_)
Kessel: also one with genetic engineering [I have no idea what this means now]
Kessel: final thing, one of impulses behind cyperpunk is to abandon body; Singularity called the rapture for nerds; Yeats poem about tethered to dying animal
audience: think not fair way of looking at body
I would really have liked some more recent works to be discussed, but maybe there isn't much more: Moon, Bujold, post-panel C.S. Friedman's _This Alien Shore_, and Nancy Kress as in skwidly's comments, and?